All text is taken directly from the web sites listed. (Updated May 2016)
Center for Autism and Related Disorders (CARD) - The Center for Autism and Related Disorders (CARD) at Kennedy Krieger Institute is a multifaceted, multidisciplinary program that serves children, families and professionals in the ASD community. The Center combines research, clinical service and training programs to unlock the potential of children with ASD, enrich their life experiences, empower parents and promote the well-being of families through evidence-based practices. One of our main endeavors is developing effective new models of care for families and providers locally, nationally and internationally
American Academy of Pediatrics (AAP) - Parents who receive a diagnosis of autism in their child face a daunting set of questions. To provide them with guidance and support, the AAP, led by the Council on Children with Disabilities (COCWD) Autism Subcommittee, has created a series of audio interviews with developmental and behavioral pediatricians, a pediatric neurologist, a general pediatrician, autism researchers, and parents of children with autism.
Autism Science Foundation. The Autism Science Foundation was founded in 2009 as a nonprofit corporation organized for charitable and educational purposes, and exempt from taxation under section 501(c)(3) of the IRS code. The Autism Science Foundation's mission is to support autism research by providing funding and other assistance to scientists and organizations conducting, facilitating, publicizing and disseminating autism research. The organization also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism. Our organization adheres to rigorous scientific standards and values. (Note: ASF has a page specifically about Autism and Vaccines titled "Beyond the Vaccine/Autism Hypothesis: What Parents Need to Know About Autism Research."
IAN (Interactive Autism Network) Has two sections
- IAN Community - Families, researchers, and anyone impacted by ASDs can take part in the IAN Community, a comprehensive online library and meeting place focused solely on ASD research. Visitors can learn about the latest research, become more informed consumers of research, and join in a worldwide collaboration of people dedicated to finding answers.
- IAN Research - Thousands of people from around the world are coming together through IAN Research, an innovative online initiative connecting researchers with individuals and families affected by autism spectrum disorders (ASD). The information being shared by those living with an ASD is already helping researchers discover new insights about the disorder and is assisting community leaders advocating for improved services. This dynamic exchange is the largest autism research study and is making remarkable strides to improve the lives of individuals and families affected by ASD. This collaborative effort strives to accelerate important breakthroughs about causes, diagnosis, and treatments which may lead to the discovery of a possible cure.
Autism Speaks - Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Their longtime friend Bernie Marcus donated $25 million to help financially launch the organization. Since then, Autism Speaks has grown into the nation's largest autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. 100 Days Kit for Newly Diagnosed Families
Autism Society of America (ASA) - The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
Autism Research Policy Practice Hub - This open-access site champions the use of research in policy and practice in the UK and beyond. We work to narrow the gap between research, practice and policy and promote evidence-based outcomes for people with autism.
Exploring Autism - The Exploring Autism website is the result of a collaboration between researchers, non-profit groups, and families who are living with autism. Organizations who make this site possible range from major universities and medical centers to the National Alliance for Autism Research.
Family NETworks - Welcome to Maryland's comprehensive online resource for disability-related information and supports. Search for resources, information, and ideas on issues ranging from early intervention and education to employment and aging services.
Centers for Disease Control and Prevention's Family Caregiver site -- If you are a family member who cares for someone with a disability, whether a child or an adult, combining personal, caregiving, and everyday needs can be challenging. This site has information for family caregivers such as yourself to help you and those you care for stay safe and healthy.
Cerebral Palsy Group. Cerebral Palsy Group is a national organization that was created so that it may serve the individuals and families who have been diagnosed with cerebral palsy. We are here to provide information and support so that we may help provide resources and education to those affected by CP.
Interacting With Autism - A video-based resource about understanding, treating and living with Autism Spectrum Disorder. This site was developed through a grant with the Agency for Healthcare Research and Quality.
National Center on Birth Defects and Developmental Disabilities (NCBDDD) - NCBDDD Autism Information Center - The National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC) seeks to promote optimal fetal, infant, and child development; prevent birth defects and childhood developmental disabilities; and enhance the quality of life and prevent secondary conditions among children, adolescents, and adults who are living with a disability.
National Institue of Mental Health (NIMH) - NIMH's investment in autism-related science more than doubled over the past 4 years. New Institute initiatives aimed at advancing basic knowledge of brain development and genetics also hold promise for understanding complex behavioral disorders like autism. NIMH's autism-related activities range from efforts to improve awareness, diagnosis and treatment, to studies involving brain imaging, tissue banks, animal models, genetics, developmental neurobiology, and neuropsychology.
National Institute of Child Health and Human Development (NICHD) - The NICHD, part of the National Institutes of Health (NIH), is one of the primary Institutes doing research into various aspects of autism, including its causes, prevalence, and treatments. The goal of this site is to provide easy access to the most current information about NICHD research projects, publications, news releases, and other activities related to autism and similar disorders.
Sesame Street and Autism. - Sesame Workshop created Sesame Street and Autism: See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities. At the same time, the project fosters an affirming narrative around autism for all families and kids.