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The Roger C. Lipitz Center for Integrated Health Care

Keyword: caregivers

Race Differences in Characteristics and Experiences of Black and White Caregivers of Older Americans

A study by Chanee Fabius, Jennifer Wolff, and Judith Kasper in The Gerontologist uses NHATS and NSOC data to examine associations between caregiver race and caregiving-related effects. The study found relative to white caregivers, black caregivers more often provided in excess of 40 hours of care per week, cared for an older adult with dementia who was living below the federal poverty line or was Medicaid-eligible. Black caregivers more often used supportive services and were less likely to report emotional difficulty than whites. Service utilization did not attenuate caregiving-related emotional difficulty or participation restrictions, regardless of race. ...Read More

Evaluation of Hospice Enrollment and Family and Unpaid Caregivers’ Experiences With Health Care Workers in the Care of Older Adults During the Last Month of Life

A study by Jennifer Wolff, Vicki Freedman, Katherine Ornstein, John Mulcahy, and Judith Kasper in JAMA Network Open uses NHATS and NSOC data to evaluate family and unpaid caregivers’ experiences with health care workers while caring for an older adult near the end of life. Findings suggest end-of-life caregivers commonly assisted with symptom management, participated in medical decision-making, and generally reported favorable experiences communicating with health care workers. However, 1 in 3 were never asked by health care workers if they needed help managing care and just half of caregivers assisting with symptom management received training. 

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Factors Associated with Receipt of Training Among Caregivers of Older Adults

Using 2015 National Health and Aging Trends Study (NHATS) data, investigators examined the prevalence of role-related training for family caregivers of older adults. Only 7% of family and unpaid caregivers of older adults reported receiving training related to their caregiving role and were more likely to receive training if they assisted an older adult who had been hospitalized in the previous year or received payment for caregiving. Results indicate that few family caregivers receive role-related training and that access to training is not significantly associated with caregiver or older adult needs. ...Read More

Care Arrangements of Older Adults: What They Prefer, What They Have, and Implications for Quality of Life

Study by Dr. Judith Kasper, Dr. Jennifer Wolff & Maureen Skehan in The Gerontologist finds that overall, about 9 of 10 older persons view in-home care with caregivers and assisted living as the best care options....Read More

An Environment Scan of Shared Access to Patient Portals

Online patient portals allow for remote access to health information. As many older patients rely on family members and friends to help them with their care, dissemination of this private information can extend beyond the doctor-patient relationship. This study by Jennifer Wolff, Victoria Kim, Suzanne Mintz, Rebecca Stametz, and Joan Griffin found that there is a lack of consistency across health systems in how they report details of shared access on patient portals. 2 out of 20 systems reported patient portals had features that allowed patients to customize what information caregivers had access to....Read More