Family and unpaid caregivers play a foundational role in the care of older adults with complex health needs and disabling conditions by assisting with a wide range of household, self-care, and medical tasks that are necessary for health, function, and community living. 

Jennifer Aufill, Julia Burgdorf, Jennifer Wolff

According to the Congressional Budget Office, family caregivers produce 80% of the total economic value of community-based long-term services and supports for older adults. We recognize that many Americans support aging family members who do not have disabling conditions. Public funds are mainly used to support family caregivers who provide care for health or function reasons. State funds are typically focused on populations with a relatively high degree of impairment and will be the focus of this report.

Facing the reality of caregiving today, states are building family caregiving into their service delivery systems—both to support caregivers and extend care to the aging population. This report gives the broad state policymaker audience insights into a handful of states that have advanced policies and programs in support of family caregivers.

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