Patient Outcomes – Patient Reported
PaTH Clinical Data Research Network
- Investigators: Dan Ford, MD and Albert Wu, MD, MPH
- Funder: Patient-Centered Outcomes Research Institute (PCORI)
- Status: Ongoing
This project aims to rapidly enroll and conduct patient-centered outcomes research with patients with Idiopathic Pulmonary Fibrosis, Atrial Fibrillation and Obesity using the Epic Electronic Health Record at Johns Hopkins, in collaboration with investigators at University of Pittsburgh, Pennsylvania State University, and Temple University (the PaTH Clinical Data Research Network). Patient Reported Outcome (PRO) measurement sets have been developed and incorporated into the EHR and will be collected across for cohorts of 1000 patients for each condition.
PaTH Network website
PaTH Network videos
Joshua S. Crites, Cynthia Chuang, Anne Dimmock, Wenke Hwang, Bobbie Johannes, Anuradha Paranjape & Albert W. Wu (2016) PROs in the Balance: Ethical Implications of Collecting Patient Reported Outcome Measures in the Electronic Health Record. The American Journal of Bioethics, 16:4, 67-68, DOI: 10.1080/15265161.2016.1146543
More publications are here.