Study to Explore Early Development (SEED)
SEED: Enrolling Families for Phase II
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The Wendy Klag Center for Autism & Developmental Disabilities is proud to be one of six U.S. sites for the Study to Explore Early Development, a research project funded by the federal Centers for Disease Control and Prevention to find the causes of autism that may be related to genetic and environmental risk factors.
In Maryland, SEED began recruiting families in 2008, enrolling mothers and their children ages 2 to 5. Nearly 600 Maryland families took part in that first phase of SEED. Now, we are excited to announce a second phase of SEED, which started in spring 2012 and continues to enroll interested families.
Our center would like to thank the hundreds of families and children who have generously volunteered for the first phase of SEED. We also would like to thank our partners in the study: the Kennedy Krieger Institute, the Maryland Department of Health and Mental Hygiene, and the Maryland State Department of Education, all of whom have made SEED successful! The first paper, about how the SEED study was conducted, was published in March 2012. More results will be published in coming months and years.
Enrollment in SEED II began in spring 2012. Some families in Baltimore City and Anne Arundel, Baltimore, Carroll, Cecil, Harford, Howard, Montgomery, and Prince George's counties who have a child ages 2 to 5 will receive a mailed invitation to take part in SEED II. However, families who live in those areas and have a 2- to 5-year-old with a documented developmental delay (including an autism spectrum disorder) may contact SEED II directly if they wish to enroll. Participating families receive no-cost developmental testing by researchers.
Read more about this national research study here
To learn more, visit www.cdc.gov/seed
How can I refer my child for SEED?
1) Contact our staff so we can see if you are eligible. Call 1-877-868-8014 or email CADDE@jhsph.edu.
2) Have your child's physician, psychologist, or early intervention provider complete a referral form. We can mail it to you or your child's service provider, or you can download it here.
3) Mail the form to Michelle Landrum, Johns Hopkins Bloomberg School of Public Health, Attn: SEED II, 615 N. Wolfe St., Room W2508, Baltimore, MD 21205
Read newsletters from SEED:
- Summer 2009
- Summer 2010
- Winter 2010
- Summer 2011
- Winter 2011
- Summer 2012
- Winter 2012
- Summer 2013
- Winter 2013
- Summer 2014
- Winter 2014
Facts about the SEED Study
- What is SEED?
- What Will Your Family Gain From Taking Part in SEED?
- What Will You Be Asked to Do?
- Who can be part of SEED?
SEED stands for Study to Explore Early Development. The study will look at possible causes and risks for developmental delays and autism spectrum disorders (ASDS).
Centers from six states are taking part in the study: California, Colorado, Georgia, Maryland, North Carolina, and Pennsylvania. Maryland SEED is being done by the Johns Hopkins University Bloomberg School of Public Health and the Kennedy Krieger Institute.
SEED is a research study with the goals of learning:
- What causes developmental delays in children.
- What causes ASDs.
- What are the common traits among children with ASDs.
- How genes and the environment affect child development.
Children 2 through 5 years old will be asked to take part in the study. Included will be families of:
- Children with ASDs.
- Children with other developmental disabilities.
- Children without developmental disabilities.
It is important for all invited families to take part so we can learn more about differences in child development. Your participation will help us look for genes and other factors that might be related to autism and developmental delays.
- A free developmental evaluation for your child.
- A summary of your child's evaluation results.
- Incentives to thank you for your family's participation in the study.
- Expert information on child development.
The first phase of SEED included nearly 2,700 children and their parents. Researchers want to enroll just as many children and parents for the second phase, creating a data set of nearly 6,000 children and adults!
- Answer questions about your child's development and your family's medical history.
- Go to a brief medical examination and developmental testing with your child.
- Give small samples of blood and cheek cells from you and your child.
- Give permission to view mother's and child's medical records.
Any information you give to SEED will be kept strictly private. It will never be shared with anyone else. Only study staff and you will be able to look at your information.
Children who were:
- Born from January 1, 2008, through December 31, 2011.
- Born in and still living in the following Maryland counties: Baltimore City, Baltimore, Anne Arundel, Carroll, Cecil, Harford, Howard, Montgomery and Prince George's counties.
Who is Participating
Researchers in Maryland, Pennslyvania, California, Colorado, Georgia and North Carolina.