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Barbara Biesecker, PhD

Director, JHU/NHGRI Genetic Counseling Training Program

Associate Professor

- Adjunct

Departmental Affiliation(s):

Health, Behavior and Society

Contact Information

National Human Genome Research Institute
31 Center Drive, MSC 2073
Bethesda , Maryland   20892
US        

301-496-3979
301-496-7157

Education

PhD , King's College , 2011
MS , University of Michigan , 1981

Overview

Research interests include understanding the reasons for use of new genetic tests that predict risk and implications of the results; quality of life for those living with different genetic conditions; adaptation to a genetic condition; the process and outcomes of genetic counseling and informed consent for prenatal tests.

  • Health Policy and Management
  • Genetic Counseling
  • Graduate program in genetic counseling
  • Gollust S, Thompson R, Gooding H, Biesecker, B: Living with Achondroplasia in an Average-sized World: An Assessment of Quality of Life. Am J Med Genet (accepted).

  • Gooding HC, Boehm K, Thompson R, Hadley D, Francomano C, Biesecker B: Issues Surrounding Prenatal Diagnosis for Achondroplasia. Prenatal Diag (in press).

  • Peters KA, Kong F, Hanslo M, Biesecker, B: Living with Marfan Syndrome III: Quality of Life and Reproductive Planning. Clin Genet 62:110-120, 2002.

  • Redlinger-Grosse K, Bernhardt B, Berg K, Muenke M, Biesecker B: The Decision to Continue: The Experiences and Needs of Parents who Receive a Prenatal Diagnosis of Holoprosencephaly. Am J Med Genet, Sept., 2002.

  • Gooding H, Wilfond B, Boehm K, Biesecker B: Unintended messages; the ethics of teaching genetic dilemmas. Hastings Cntr Rpt, March-April:37-39, 2002 .